site logo

Resources

Sotos Syndrome Support Group

This parent support group provides information for parents and health professionals. 

National Organization of Rare Disorders

NORD (National Organization for Rare Disorders) - Sotos Syndrome

Behavioral and emotional characteristics in children with Sotos

This article "Behavioral and emotional characteristics in children with Sotos syndrome and learning disabilities" discusses psychological and educational supports for individuals with Sotos Syndrome. 

Classroom Accommodations for Students with Visual Issues

Classroom Accommodations for Students with Visual Issues is a resource from Boulder Valley Vision Therapy, P.C., in Boulder, Colorado. It describes a variety of variety of issues and offers strategies.

GeneReviews

GeneReviews - learn more about the genetics of Sotos syndrome

Genetics Home Reference

Consumer-friendly information about human genetics from the U.S. National Library of Medicine

Genetics Home Reference for Sotos syndrome