As of September 1, 2017, funding to update this important resource is no longer available. Please consider supporting our efforts to keep the site’s information current and helpful to all those who need it by making a donation. 100% of your tax deductible donation will be used to support continued improvements and dissemination of this great resource. Our initial focus will be on:
- Updating conditions where medical guidelines have substantively changed
- Improving dissemination of the website to underserved populations
- Adding new conditions and related materials as resources allow
To make a contribution:
- Click on the "Donate Today" button (this will take you to a separate UNH donations page and will open a new browser window)
- Pick Genetics Education Materials for School Success (GEMSS) from the list Giving Opportunities
- Follow the provided instructions
Please let us know if you’d like to be put on our email list and receive updates when major site changes are made
If you’d like to know more about why we are making this request, please read on…
The GEMSS website provides families, educators, health providers and others supporting individuals with a genetic condition with an invaluable range of helpful resources. These resources, including tips on addressing medical needs, education supports, and emergency planning, can be instrumental in helping a child get the most out of every opportunity provided to them. Launched in February 2012 under the auspices of the New England Genetics Collaborative with funding by HRSA Grant# 46UMC24093, the GEMSS site has grown to include critical information on 37 rare conditions. Pulling the information together for each condition involves a multi-step review process involving specialists and family advocacy groups to ensure the information is as comprehensive as possible. We are excited to report that, to date, the site has served over 90,000 people from all over the world, with all US States represented in its reach.
Unfortunately, as of September 1, 2017, funding to update this important resource is no longer available. While the Institute on Disability at UNH is able to provide ongoing support for web hosting and staff have volunteered their time to help the site reach more people, we lack the resources to support the additional expertise needed to update critical information for existing conditions, let alone to add new ones.
If you have any questions about the GEMSS initiative and how these funds will be used, please contact Peter.Antal@unh.edu.
With great appreciation for your consideration and support for our efforts,
Peter Antal, Ph.D.
Institute on Disability, UNH