During FY20, GEMSS was fortunate to receive part of its funding via a HRSA grant for the New England Regional Genetics Network. These funds are being used to update the information on several of the conditions hosted on our site. Additional areas we need funding support for include:
- Improving dissemination of the website to underserved populations
- Adding new conditions and related materials as resources allow
- Translating the website to alternate languages
If you are able to donate to support this work or have suggestions on organizations that may be interested in sharing our mission, please let us know!
To make a contribution:
- Click on the "Donate Today" button (this will take you to a separate UNH donations page and will open a new browser window)
- Pick Genetics Education Materials for School Success (GEMSS) from the list Giving Opportunities
- Follow the provided instructions
Please let us know if you’d like to be put on our email list and receive updates when major site changes are made.
If you’d like to know more about why we are making this request, please read on…
The GEMSS website provides families, educators, health providers and others supporting individuals with a genetic condition with an invaluable range of helpful resources. These resources, including tips on addressing medical needs, education supports, and emergency planning, can be instrumental in helping a child get the most out of every opportunity provided to them. Launched in February 2012 under the auspices of the New England Genetics Collaborative with funding by HRSA Grant# 46UMC24093, the GEMSS site has grown to include critical information on 37 rare conditions. Pulling the information together for each condition involves a multi-step review process involving specialists and family advocacy groups to ensure the information is as comprehensive as possible. We are excited to report that, to date, the site has served over 150,000 people from all over the world, with all US States represented in its reach.
If you have any questions about the GEMSS initiative and how these funds will be used, please contact Peter.Antal@unh.edu.
With great appreciation for your consideration and support for our efforts,
Peter Antal, Ph.D.
Institute on Disability, UNH