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Resources

Sickle Cell Disease Association of America (SCDAA)

The Sickle Cell Disease Association of America has envisioned a national coordinated approach to addressing things related to sickle cell disease since 1971. There are member organizations across the country.

Genetics Home Reference/Your Guide to Understanding Genetic Conditions - Sickle Cell Disease

The Genetics Home Reference provides consumer-friendly information about the effects of genetic variations on human health (not a substitute for professional medical care or advice).

Sickle Cell Information Center

The mission of the Sickle Cell Information Center is to provide sickle cell patient and professional education, news, research updates and world wide sickle cell resources. 

Kid's Health from Nemours - Sickle Cell Disease

KidsHealth is the #1 most-visited website for children's health and development.

Sickle Cell Kids

Sickle Cell Kids is for kids with sickle cell disease to have a way to connect with others. 

National Center for Biotechnology Information (NCBI) Bookshelf - Sickle Cell Disease
American Academy of Pediatrics (AAP) - Health Supervision Guidelines

The AAP endorses these Health Supervision Guidelines. Families may find these helpful when talking to their pediatricians or family physicians.

Centers for Disease Control and Prevention

Tips for Supporting Students with Sickle Cell Disease was created by the CDC in order to provide a tool for teachers, other school staff, and parents/caregivers to support students living with SCD. 

Add to our resources! Do you recommend any helpful groups, books, organizations that would be useful to other educators/parents? Please share the specific titles or addresses with us.