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Resources

Noonan Syndrome Foundation

The Noonan Syndrome Foundation, a branch of the RASopathies Foundation, offers help to get answers, find support, and stay connected. 

Noonan Syndrome: “the most common syndrome you've never heard of.”

Management of Noonan Syndrome - Clinical Guidelines

These clincal guidelines were developed by the "Dyscerne" Noonan Syndrome Guideline Development Group, and are provided here with permission of the key author, Bronwyn Kerr (UK). 

'The guidelines aim to provide clear, and whenever possible evidenced-based recommendation for the management of patients with Noonan syndrome.' 

Noonan Syndrome Association (UK)

The Noonan Syndrome Association, in the United Kingdom, provides comprehensive support through research and raising awareness. 


National Center for Biotechnology Information (NCBI) Bookshelf - Noonan Syndrome

Learn more about the genetics of Noonan Syndrome.

PubMed Health - Noonan Syndrome

Learn more about Noonan Syndrome from the U.S. National Library of Medicine.

Noonan Syndrome: Clinical Features, Diagnosis, and Management Guideline

This article was featured in an issue of Pediatrics, the Official Journal of the American Academy of Pediatrics in September 2010. The article includes information about the diagnosis of Noonan Syndrome and how to manage Noonan Syndrome. 

Marla Wessland's Noonan Syndrome information webpage

http://www.wessland.com/noonansyndrome.htm 

This comprehensive list of information and resources is maintained by Marla Wessland, whose daughter, Sara, is featured on GEMSS - "Meet a Child with Noonan Syndrome".

Rene Pierpont, PhD - Selected Peer-Reviewed Publications

Dr. Pierpont's selected publications may be found here, as well as biographical information. Dr. Pierpont is looking into the neuropsychological features of Noonan syndrome, which may interest those involved in education.

Noonan Syndrome Awareness Association (Australia)

The Noonan Syndrome Awareness Association (NSAA) works to increase awareness of Noonan Syndrome among health professionals and the general public, as well as to help families find and access services. They are located in Australia. 

Classroom Accommodations for Students with Visual Issues

Classroom Accommodations for Students with Visual Issues is a resource from Boulder Valley Vision Therapy, P.C., in Boulder, Colorado. It describes a variety of variety of issues and offers strategies.

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