The Noonan Syndrome Foundation, a branch of the RASopathies Foundation, offers help to get answers, find support, and stay connected.
Noonan Syndrome: “the most common syndrome you've never heard of.”
These clincal guidelines were developed by the "Dyscerne" Noonan Syndrome Guideline Development Group, and are provided here with permission of the key author, Bronwyn Kerr (UK).
'The guidelines aim to provide clear, and whenever possible evidenced-based recommendation for the management of patients with Noonan syndrome.'
This article was featured in an issue of Pediatrics, the Official Journal of the American Academy of Pediatrics in September 2010. The article includes information about the diagnosis of Noonan Syndrome and how to manage Noonan Syndrome.
This comprehensive list of information and resources is maintained by Marla Wessland, whose daughter, Sara, is featured on GEMSS - "Meet a Child with Noonan Syndrome".
Dr. Pierpont's selected publications may be found here, as well as biographical information. Dr. Pierpont is looking into the neuropsychological features of Noonan syndrome, which may interest those involved in education.
The Noonan Syndrome Awareness Association (NSAA) works to increase awareness of Noonan Syndrome among health professionals and the general public, as well as to help families find and access services. They are located in Australia.
Classroom Accommodations for Students with Visual Issues is a resource from Boulder Valley Vision Therapy, P.C., in Boulder, Colorado. It describes a variety of variety of issues and offers strategies.