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New England Consortium of Metabolic Programs

The New  England Consortium of Metabolic Programs The New England Consortium of Metabolic Programs brings together healthcare professionals at all levels involved in identifying and treating individuals with metabolic disorders. 

The goals of the Consortium are to disseminate information, collaborate in the development of social support programs and educational materials, support organizations for parents and adults with metabolic disorders, provide training for students in medicine and related fields, jointly develop and conduct research projects, and establish uniform treatment protocols for individuals with metabolic disorders.

An Educators' Guide to MCADD

An Educators' Guide to MCADD  is a project supported by the New England Genetics Collaborative (NEGC) and HRSA, with help from physicians at Children’s Hospital Boston, Elementary school teachers, Parents of children with MCADD,The FOD Family Support Group.

FOD Family Support Group

FOD Family Support Group - 'All in this together'

For our purposes, FOD (Fatty Oxidation Disorders) and FAOD (Fatty Acid Oxidation Disorders) refer to the same groups of conditions.

Genetic Fact Sheets for Parents

Fatty Acit Oxidation Disorders - MCAD

by Screening, Technology & Research in Genetics/Expanded Newborn Screening

Genetics Home Reference - MCAD
National Center for Biotechnology Information (NCBI) Bookshelf - MCAD

Add to our resources! Do you recommend any helpful groups, books, organizations that would be useful to other educators/parents? Please share the specific titles or addresses with us.