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Physical Activity, Trips, Events

What you need to know

  • Exercise is important and should be encouraged, especially those exercises that build muscle mass and motor skills.
  • Coordination may be a problem and make individuals a target for teasing.
  • Lack of stamina and energy levels can be problem
  • If you live in New England (USA) and qualify, Northeast Passage offers Therapeutic Recreation and Adaptive Sports programming.

What you can do

  • Encourage exercise
  • Encourage practice to help build coordination.
  • Teach boys who have KS how to pace themselves and learn when to rest.