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Medical / Dietary Needs

What you need to know 

  • No special diet is required for KS although a well-balanced diet is important. Certain children may have a GI tube or medications/accommodations for reflux.
  • The severity of any one of the possible medical problems varies widely between individuals.  Therefore, it is important to ask the parents about the medical issues in their child.
  • School age children with KS may have annual doctor and specialist visits to monitor medical conditions. 
  • Be aware, or ask a parent, if the child has a medical alert bracelet.

What you can do

  • A yearly checkup and studies as needed should occur in the child’s Medical Home. 
  • Eye and hearing exams may be done at school
  • Be aware of any changes in behavior or mood that seem out of line with the situation and notify the parents.
  • It is important to be aware of any academic changes.  Contact parents when any differences are noticed.