site logo

Behavior & Sensory Support

What you need to know 

People with Kabuki syndrome have a higher incidence of anxiety, attention problems, obsessive-compulsive traits, and autistic behaviors.  However, although they may have autistic like behaviors and/or sensory processing disorder, many will not be officially diagnosed with autism.

Possible Communication Issues
  • Language delays
  • Difficulty waiting their turn
  • Interruptions
  • Self-talk
  • Repetition of questions
Possible Social Interaction Issues
  • Poor eye contact
  • Understanding social cues
  • Abstract thinking
  • Short attention span
Sensory Challenges
  • Extra sensitive to touch and/or visual stimuli
  • May dislike loud noises, smells, food tastes, and textures
Behaviors
  •  
  • Self-stimulation behaviors
    • Hand flapping
    • Head shaking
    • Rocking
    • Repeating phrases
  • Self-injurious behaviors
    • Head banging
    • Biting self
  • Very oral (biting on non food items)
  • Music
    •  Many enjoy music and rhythm
  • Play
    • Like to play or do the same thing over and over
    •   Enjoy playing with younger kids

What you can do

  • Many children with KS will sometimes exhibit some autistic-like behaviors
  • Whether or not they have an autism diagnosis, the types of interventions and therapies may be the same
  • Structure, routine, and preparation for change are all helpful
  • Calming activities
  • Clear concrete plans and visual cues (i.e. visual sign for quiet)
  • Proactive behavioral plans that include goals, rewards, and consequences for appropriate behavior
  • Seating in back section of room and/or allow seating near exit.
  • Structure and predictability
  • Reduced level of environmental noise/sound, natural lightening, and avoidance of crowded areas.
  • Predictable transitions and signal with visual cues
  • Non-verbal cues and feedback
  • Role playing the behavioral consequences
  • Alternative to stressful events
  • Breaks and downtime if needed
  • Work on conversational skills and friendships