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Behavior & Sensory Support

What you need to know   

Individuals with EDS may have:

  • Psychological and psychosocial difficulties
    • Fatigue and pain may make psychological problems worse
    • Psychological distress may increase pain
    • Depression, anxiety, affective disorder, low self-confidence, negative thinking, hopelessness and desperation may occur
      • Depression is often associated with chronic pain, disabilities
    • Individuals may feel misunderstood, disbelieved, alone
    • Children may be self-conscious of physical differences
  • Pain
    • Pain can be a major part of EDS
    • Fear of pain and joint instability may lead to avoidance behaviors, and make dysfunction and disability worse 

What you can do 

  • Counseling and support for pain may help
  • Meditation and yoga could be helpful
  • Antidepressants may be helpful
  • Need help with adaptation and acceptance of issues and potential limitations.