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Resources

Cystic Fibrosis Foundation

The Cystic Fibrosis Foundation  is a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.

"Living with CF at School", produced by the CF Foundation, is intended to help individuals manage CF at school.

Genetics Home Reference - Cystic Fibrosis

Genetics Home Reference - learn more about the genetics, diagnosis, and/or management of CF

Sample 504 Plan for a child with CF

Here is a sample 504 Plan for a child with CF, written by a parent. 

Sample emergency plan

Here is a sample emergency plan and forms for a child with special health needs (including CF). 

Individuals with Disabilities Education Act (IDEA)

The Individuals with Disabilities Education Act (IDEA) is a law ensuring services to children with disabilities throughout the nation. IDEA governs how states and public agencies provide early intervention, special education and related services to more than 6.5 million eligible infants, toddlers, children and youth with disabilities.

National Heart, Lung, and Blood Institute

The National Heart, Lung, and Blood Institute (NIH) "What is Cystic Fibrosis" Article

Mayo Clinic

Add to our resources! Do you recommend any helpful groups, books, organizations that would be useful to other educators/parents?

Please share the specific titles or addresses with us.