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Medical and Dietary Needs

What you need to know

  • Certain muscular dystrophies have special diets or dietary restrictions.  It is important to discuss dietary needs of the child with the parents.  If there isn’t a special diet required for an individual, a well-balanced diet is important.
  • When the muscles used in swallowing and chewing are weakened, there’s a risk of dehydration, malnutrition, choking, or respiratory infections caused by inhaling food or liquid into the lungs (aspiration).
    • Gastrostomy (G-tube) tube may be required
    • If acid reflux is present, allow child to keep antacids in nurse ‘s office
  • It is important to discuss the nature of the student’s condition and implications for school activities. The child’s physicians will determine the student’s permitted activities and levels.
  • School age children with neuromuscular disorders may have multiple doctors and specialist visits to monitor medical conditions.
  • In almost everyone with a neuromuscular disease, bladder and bowel control are normal, although students may need help in the bathroom as their physical abilities weaken.
  • If diabetes is present, follow care plan for that student.

 What you can do

  • A yearly check-up and studies as needed should occur in the child’s Medical Home. 
  • Be aware of any changes in behavior or mood that seem unusual and notify the parents.
  • Be aware of any academic changes. Contact parents when any differences are noticed. 
  • Accommodate students who may need to visit the nurse to take medications during school.
  • Be aware that the student will often have increased susceptibility and life threatening consequences of respiratory infections:
    • Yearly administration of pneumococcal vaccine and influenza vaccination 
    • (RSV) vaccine should be considered.
    • Any infection should be treated promptly before it progresses to a serious illness.
  • Ensure exposure to sunshine and a balanced diet rich in Vitamin D and calcium to improve bone density and reduce the risk of fractures.
  • Know the signs and symptoms of heart failure and or breathing difficulties.
  • Be aware of how to support a student who has diabetes (if the child is diagnosed with diabetes).