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Health Care Transition for Young Adults

Regarding healthcare transition, these concepts are especially important:

  • Transition does not always mean transfer of care, but rather greater autonomy
    in healthcare decisions and greater independence in caring for one's own medical needs.
  • Healthcare transition is connected to attainment of a sense of identity,
    separate from one's parents and one's health condition. 
  • Self-advocacy and empowerment facilitate the transition process and can be
    learned.

There are also special issues to consider, including:

  • Difficulty finding providers beyond the pediatric years, who are willing to take on rare and complex cases
  • Fear of parents to let go 
  • Reluctance of young people to
    disappoint the parents who have cared for them so well, while at the same time
    wanting to forget they have a health condition and refusing treatment