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GEMSS - Genetics Education Materials
for School Success

The aim of GEMSS is to assure all children with genetic health conditions succeed in school-life. Children who have genetic conditions are members of neighborhood schools across the country. In fact, it is estimated that about 1 in 20 children has a genetic condition.  

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 New! Learning Module for GEMSS
Training materials for your higher education class!


Who Should Use It?

Teachers and parents use GEMSS to better understand the needs of students who have genetic conditions. If you support a child just beginning his or her educational journey, GEMSS was created for you!

We have included genetic conditions such as 22q Deletion Syndrome, Down Syndrome, Fragile X, MCAD, PKU, Sickle Cell Disease, VLCAD, and Williams Syndrome, with more conditions being added. GEMSS will help you provide the best education and most meaningful supports for these children.

How GEMSS might help

We have chosen six important areas of school life to address:

  • Medical / Dietary Needs
  • Education Supports
  • Behavior & Sensory Supports 
  • Physical Activity, Trips, Events
  • School Absences & Fatigue
  • Emergency Planning  

Pages can be printed for easy sharing!

Click here for specific ideas on how to use GEMSS!

Why Gemss?

GEMSS are tools for schools! They explain genetic conditions and offer helpful strategies for use in classrooms. These include ideas for emergencies, field trips, diets, communication, instruction, and more!

We recommend that you browse through several conditions to get to know the GEMSS tools.

Click here for materials to promote GEMSS.