GEMSS was developed by the Education & Outreach work group, within the New England Genetics Collaborative (NEGC). The NEGC is a group of specialists from the six New England states: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont (read their mission).
- The overall goal of the Education & Outreach group is to promote awareness of and education about genetic conditions.
- Work group members come from clinical, public health, advocacy, and academic settings.
- In 2010 the group conducted focus groups in three elementary school settings to get feedback about the usefulness of a website like GEMSS. Read more.
GEMSS is not intended to provide medical advice nor to aide in making a diagnosis. See full disclaimer.
NEGC and this project are funded by Cooperative Agreement No. U22MC10980 between the University of New Hampshire and the Health Resources and Services Administration/Maternal and Child Health Bureau/Genetic Services Branch.
Contact: Karen Smith, Project Coordinator, New England Genetics Collaborative; 603-862-3454.