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GEMSS was developed by the Education & Outreach work group, within the New England Genetics Collaborative (NEGC). The NEGC is a group of specialists from the six New England states: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont (read their mission).

  • The overall goal of the Education & Outreach group is to promote awareness of and education about genetic conditions.  
  • Work group members come from clinical, public health, advocacy, and academic settings.
  • In 2010 the group conducted focus groups in three elementary school settings to get feedback about the usefulness of a website like GEMSS. Read more. 

GEMSS is not intended to provide medical advice nor to aide in making a diagnosis. See full disclaimer.

NEGC and this project are funded by Cooperative Agreement No. U22MC10980 between the University of New Hampshire and the Health Resources and Services Administration/Maternal and Child Health Bureau/Genetic Services Branch.  

Contact: Karen Smith, Project Coordinator, New England Genetics Collaborative; 603-862-3454.